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The Cambridge Cohort of Open Spina Bifida
dataset
posted on 2021-06-22, 15:57 authored by Pippa Oakeshott, Fiona ReidThe dataset comprises nine reviews of 117 consecutive infants (50 male) born in 1963-1971 with open spina bifida and treated unselectively within 48 hours of birth at Addenbrooke’s Hospital, Cambridge, UK. The earlier reviews were conducted at home and school at the mean ages of 4 and 9 years and included clinical examination. Later reviews were based mainly on questionnaires (completed by patients and/or carers) and clinical records. The Office for National Statistics provided information on deaths to August 2017. The cohort is unique in having information from detailed neurological examination at birth and 99% follow up to the mean age of 50 years.
Selected publications from this dataset can be found in the 'References' section below. A full reference list with further publications from this work can be found in the README file included in the data package.
This is an anonymised version of this dataset. Dates of birth of cases (who were all born in 1963-1971) are available from the investigators, subject to appropriate approvals.
Selected publications from this dataset can be found in the 'References' section below. A full reference list with further publications from this work can be found in the README file included in the data package.
This is an anonymised version of this dataset. Dates of birth of cases (who were all born in 1963-1971) are available from the investigators, subject to appropriate approvals.
Funding
Medical Research Council
East Anglian Regional Health Authority
Association for Spina Bifida and Hydrocephalus
Newlife Foundation for Disabled Children
History
Research Institute
- Population Health
Usage metrics
Categories
- Neurology and neuromuscular diseases
- Medical biochemistry and metabolomics not elsewhere classified
- Epidemiology not elsewhere classified
- Health care administration
- Health and community services
- Other health sciences not elsewhere classified
- Paediatrics not elsewhere classified
- Public health not elsewhere classified
- Clinical sciences not elsewhere classified
- Surgery
Keywords
spina bifidacohort studieslongitudinallife expectancyopen spina bifidaprospectiveoutcome datamobilityprospective cohort studiesmyelomeningocelehydrocephalusneurosurgeryNeurology and Neuromuscular DiseasesBiomarkersDiseasesEpidemiologyHealth CareHealth and Community ServicesMedical and Health Sciences not elsewhere classifiedPaediatricsPublic Health and Health Services not elsewhere classifiedClinical Sciences not elsewhere classifiedSurgery